The World Health Organization estimates that 225,000 children are born annually with Sickle Cell Disease in Africa. Up to 180,000 - die before the age of 5. Sickle Cell causes horrendous, crippling pain during sickling episodes. The course of the resulting disease is devastating. Victims endure lives in which their bodies are frequently racked by off the charts pain; and they end up at higher risk for strokes, renal failure, pulmonary hypertension, and blindness.
Not one more child should die because they are not treated. The Shikuri Project exists to introduce and implement sustainable Chronic Health Care Management programs at the Community Level, to reduce the number of deaths and painful crises suffering of young children with sickle-cell disease in Africa. We are serving the underserved communities in Kenya, and eventually will expand toothers in East Africa. The Shikuri Project envisions the establishment of sustained, sickle-cell diagnostic and treatment centers and trained personnel serving communities with high-prevalence and lack of access to national programs in East Africa.
What We've Achieved
- Introduced screening and diagnosing of infants for Sickle Cell Disease in communities with no medical facilities
- Routine patient treatment and monitoring
- Parent and caregiver training and counselling
- Pain medications; Thermometers for households
- Hydroxyurea (increases the amount of fetal hemoglobin (Hb F) which helps the red blood cells stay round and ﬂexible, which allows blood to travel more easily through tiny blood vessels and lowers the risk of strokes from low HGB);
- Providing medicines and essential supplies including Penicillin prophylaxis; Antibiotics for preventing and treating infections
- Anti-Malarials: to prevent malaria – to which sicklers are more vulnerable
- Refer patients from community to hospitals for life saving treatment and laboratory tests; monitor patients
- Educate and promote awareness in the communities
- Partner with local authorities to Mainstream Sickle Cell management activities into community health care guidelines